2. Dealing with parental anxiety
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2. Dealing with parental anxiety
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For parents of those with rare bone marrow conditions, life can be exceedingly stressful. How can you manage this anxiety and support their child well?
Conditions mentioned in this episode: Fanconi Anaemia, Shwachman Diamond Syndrome, Dyskeratosis Congenita.
Further reading:
fanconihope.org sdsuk.org dcaction.org theaat.org.uk super-rare.org
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