1. Living with a rare condition
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1. Living with a rare condition
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What is it like living with a rare blood or bone marrow disorder? In the first episode of this series, we discuss what it’s like to live with a rare condition day-to-day.
Conditions mentioned in this episode: Sickle cell anemia, Dyskeratosis Congenita, Paroxysmal Nocturnal Haemoglobinuria
Content note: This episode discusses miscarriage and pregnancy loss.
Further Reading:
super-rare.org theaat.org.uk pnhuk.org dcaction.org togetherwecan.uk
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